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Permlink Replies: 38 - Last Post: May 22, 2010 10:41 PM Last Post By: SereneMaxine
Margoc

Posts: 7
Follow Margo's surgery
Posted: Apr 11, 2010 4:37 PM
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Let me go back to Jan 21. I had a pain behind my belly button and I thought it was from bad tuna. On Jan. 22 the pain moved to the right side and I thought I had gas. By the time we were getting ready for bed I knew something was wrong and I told Marlow we needed to go to the hospital. So we got in the car, still in our jammies, and drove the little over an hour to the hospital.

After giving them my complaints they were pretty sure it was appendisitis. But to be sure they started and IV and drew labs. My white count was up and I was a little dehydrated so they pushed fluids through the IV (painful) so they could get a good picture on the CT scan. When I finally got to the CT scan they injected dye, got the scans and then sent me back to the ER. It was then that I found out that surgery that had been scheduled for noon was changed to immediately because the appendix was ruptured. The doctors then began asking me if I was having pain in my lower left back and I told them "no, it's right here" while putting my hand on my lower right front. it was then we learned a mass showed up behind the left kidney on the scan.

After surgery I woke up in a room in a groggy fog. After I could focus my eyes I realized there were posters on the board at foot of my bed. They were all about Transplant Family Support Groups, Transplant diet and meals, times to call for Transplant meals. I quickly raised the sheet to see what all they had done to me. I certainly didn't need to have a new appendix transplanted.

The nurse told me that the after care for a ruptured appendix is the same as that for a transplant. That pretty much boils down to not more than 1 - 2 hours of sleep before being awakened for a blood draw, temperature, get up for a walk, etc. So that's the way it went until my white blood count was normal so I could go home - which was Tue. afternoon.

Since I was restricted to not picking up anything more than 10 pounds Marlow took over most of the household chores. It also meant I had to get a smaller purse. Our walking was pretty much at the mall (where I could get a manicure/pedicure) and the grocery store. There was too much snow and ice to walk outside. That plus it was cold.

On the first follow-up visit to the surgeon he said I needed to have a needle biopsy of the mass. Let me tell you, it is not something I would be looking forward to again. It was very painful. And, again, I was restricted to not lifting more than 10 pounds. You can see where this is going can't you?

On the follow up from the doctor said it was cancer and he had already made an appoint with a Surgical Oncologist for me. He said it would be the doctor he chose if he had cancer. This doctor told us I had Retroperitoneal adenocarcinoma. I had to come home and look this one up. Regroperitoneal means the space it occupies - behind the kidney and down into the pelvic cavity - sort of behind the butt cheek. Adenocarcinoma is epithelial and comes from the lining of just about every organ in the body. But, they were pretty sure these cells came from the colon and they felt I had colon cancer.

So, began a series of tests. The first was a colonoscopy. Good news/bad news - the colonoscopy was negative for cancer. Next came an upper endoscopy (tube down throat into stomach) and good news/bad news - the stomach and esophagus was negative for cancer. Where could it be? They they checked the breasts and lungs - they were negative for cancer too.

So, now it is time for surgery. We were told that all of the abdominal organs will be lifted out of the body so he can get back to the area of the tumor. If he finds that the tumor has attached to the kidney he may have to remove a part of or all of the kidney. If it has attached to the small intestine he will have to remove a large section of that. We won't know until after surgery what was removed and what other therapy may be required. The surgery will take 3-6 hours or more and I will be in the hospital 5-7 days or more. All depends on the findings during surgery.

In Feb. I received two prayer shawls - one from the congregation that I attend here in WI and the other from my former congregation and work place in SD. In the box from SD there were also many, many get well prayer cards from my friends there. Some of those were from children who honestly let me know how it feels to be ill. They wrote about the stitches in their lip, casts on their arms and injuries from hockey. How can I not get better with prayers such as these.

I have made many new friends in the short time I have been here in WI and I have received phone calls, visits and cards.

All of this has made me feel so loved and supported.

On Friday night my piano teacher had a healing party at her house. Twenty people were there and there were scriptures and song. Then, we went around the room and laid hands on each other then annointed and marked the sign of the cross with oil on each others forehead. Again, how can I not get well with this show of support. Also, a friend presented me with a book - When God Winks. No one knows I had that book on my wish list. But God knew I needed to read it now and accept this offering from a friend.

I am surrounded by such love and support by family and friends old and new. I have to learn to let them help me as a form of healing and a gift to me. I have to be comfortable with letting Marlow do the things he wants to do for me as his was of a healing gesture and a way to show his love for me. I have to return all of this love by letting it happen.

God knows that I need to learn this lesson and has placed this "coincidence" in my life at this time. He has placed my family and friends in my life at this time to let me learn the lesson of letting other people be a part of healing and loving.

So, unless anything important happens between now and the 23rd this will probably be it. Marlow will post when he can about the results of the surgery and as soon as I am able and up to it I will give you more details.
Harriet


Posts: 4,195
Re: Follow Margo's surgery
Posted: Apr 12, 2010 8:32 AM   in response to: Margoc in response to: Margoc
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Eeuw! This does not sound like fun! Will be thinking about you and keeping you in prayer!
Loves To Sing

Posts: 40
Re: Follow Margo's surgery
Posted: Apr 22, 2010 3:00 PM   in response to: Harriet in response to: Harriet
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We do have the Surgery time so here it is. The Surgery time is 1:00PM tomorrow. We need to be there 2hrs. early so not to be late we will leave here by 9:30AM. It usually takes about an hour to get there it will take some time to park & get were we are to be. Will let you know as soon as possible tomorrow what will be done & how long it will take.

Edited by: Loves To Sing on Apr 22, 2010 3:01 PM

Edited by: Loves To Sing on Apr 22, 2010 3:02 PM
Jkat


Posts: 359
Re: Follow Margo's surgery
Posted: Apr 22, 2010 3:25 PM   in response to: Loves To Sing in response to: Loves To Sing
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Keeping you both in prayer :x
Loves To Sing

Posts: 40
Re: Follow Margo's surgery
Posted: Apr 28, 2010 4:09 PM   in response to: Jkat in response to: Jkat
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Well Margo did not get to go home today. She is very Nauseated so she will be here at least today. They did take her to Ex ray we don't know the Results yet will let you know as soon as we find out. They are going to get her to sit in the chair more & also walk more.
Till next time
Margo & Marlow
Loves To Sing

Posts: 40
Re: Follow Margo's surgery
Posted: Apr 29, 2010 8:18 AM   in response to: Loves To Sing in response to: Loves To Sing
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Well the good day has arrived Margo called & the paper work is started for Margo to come home today. I will need to be getting ready to go get Margo Home. We will let you know when we get home. It should be early afternoon.
Thanks for all the prayers.
Margo & Marlow
Screnem


Posts: 372
Re: Follow Margo's surgery
Posted: Apr 22, 2010 10:51 PM   in response to: Loves To Sing in response to: Loves To Sing
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LT;
Does Margo have to go to Mad town for this? 1 hour is a bit much. Praying that all goes well.
scren
Loves To Sing

Posts: 40
Re: Follow Margo's surgery
Posted: Apr 23, 2010 12:37 PM   in response to: Loves To Sing in response to: Loves To Sing
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It's a good thing we were early. Surgery is ahead of time. Margo was taken by 12:00PM . there will be updates every 1&1/2 Hours. Will let you know as time goes on.
Loves To Sing

Posts: 40
Re: Follow Margo's surgery
Posted: Apr 23, 2010 1:29 PM   in response to: Loves To Sing in response to: Loves To Sing
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Surgery has started everything is going good .
Loves To Sing

Posts: 40
Re: Follow Margo's surgery
Posted: Apr 23, 2010 4:12 PM   in response to: Loves To Sing in response to: Loves To Sing
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The Tumor was not attached to any other Organs. There was some attachment to the back muscles. We will know more later about further treatment.
Loves To Sing

Posts: 40
Re: Follow Margo's surgery
Posted: Apr 23, 2010 7:34 PM   in response to: Loves To Sing in response to: Loves To Sing
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Margo is in the room will see her soon.
thunder001


Posts: 67
Re: Follow Margo's surgery
Posted: Apr 24, 2010 12:26 AM   in response to: Loves To Sing in response to: Loves To Sing
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Jen and I send our prayers; we have been so busy with so many changes in our lives, that it literally has taken time out of chatting with you all. We tried to connect for JCat and Smack when their loved one passed away, but that did not happen either. Now I am working again and we are moving on top of that, so have been busy early and late packing. Still in the town we were in (didnt mention it but you all know where). Job is doing good but reality says if I survive a year, I should be good, now only 4 weeks in, so still low on the totem pole. Please give Margo our gentle hugs and tell her she has support and prayers from us. We pray for you too Marlow, stay strong and get energy from God above.... Lord knows there are many times in my life that all I had was that prayer of energy from God... and He has never failed me yet. God bless Marlow and Margo, and please God, grant swift recovery and healing to Margo... we need her for a long while yet
Loves To Sing

Posts: 40
Re: Follow Margo's surgery
Posted: Apr 24, 2010 12:23 PM   in response to: Loves To Sing in response to: Loves To Sing
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Margo is doing very well. She did sit in a chair for awhile. Not bad for the the day after Surgery. Thank you for all the Prayers it is so nice to have so many Friends & Family.I did go home last night & did get a good nights sleep which i needed. The Doctor was in after I got here. We will get the results from Pathology hopefully early Monday or Tuesday. I hope & pray that it is all removed. Will let you know when I find out more.
Tina


Posts: 96
Re: Follow Margo's surgery
Posted: Apr 24, 2010 1:10 PM   in response to: Loves To Sing in response to: Loves To Sing
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We are keeping you and your family in our prayers.

Tina and Pastor Dave

Loves To Sing

Posts: 40
Re: Follow Margo's surgery
Posted: Apr 25, 2010 6:41 PM   in response to: Tina in response to: Tina
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Margo went for a walk in the hall really went quite a ways. Also is looking better all the time. It should help now that she needs to get up to go to the Bathroom. Is eating some jello & clear liquids.
Margo & Marlow
Loves To Sing

Posts: 40
Re: Follow Margo's surgery
Posted: May 12, 2010 8:24 AM   in response to: Tina in response to: Tina
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I got my staples out today. As soon as they were all out the incision opened up a little so out came the glue and steri strips. My railroad looking scar now looks like a construction site with all the tape holding everything together. The good thing is, the staples are out.

A 3rd year medical student removed them and when he saw it opening up he went to get a resident who said it looked OK as long as he glued it together. While he was doing that the doctor came in and sat down and asked how things were going. He has a way of calming and talks to you like an old friend. He actually lets one be involved in their care.

He said the oncologist he has referred me to is an expert in rare cancers. And I do have a rare one. Only about 30 cases world wide have been reported. So, there is little in the literature on how to do follow up treatment. This is something we will have to wait to discuss with him next week.

In the meantime he said I can begin to get life back to normal as I feel up to it. I can go get a pedicure in the massage chair (he said I deserved it) but not to do any heavy lifting, bending, etc. He said in about a week I should begin to peel off the steri strips.

I really appreciate all of your prayers, cards, comments for me, Marlow and our health care team. I know it has made a huge difference for all of us. We can feel the love that surrounds us. I am sure the prayers are working to also make follow up on this more tollerable.

Please keep the prayers coming as we begin another week of waiting to see what comes next.

Margo and Marlow
momof4greatkids


Posts: 118
Re: Follow Margo's surgery
Posted: Apr 24, 2010 3:11 PM   in response to: Loves To Sing in response to: Loves To Sing
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Prayers go up for you both...I have really enjoyed talking to you in chat and pray that God continues to bless both of you so that you can continue to bless all of us who come here just looking for friends and kind hearts.

Mom of 4 (Beth)
Loves To Sing

Posts: 40
Re: Follow Margo's surgery
Posted: Apr 24, 2010 7:04 PM   in response to: Loves To Sing in response to: Loves To Sing
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Margo was sitting siting up for over 1/2 an hour & then went for a short walk is back in bed now. Also got a good long nap today.
Smiley1965


Posts: 8,217
Re: Follow Margo's surgery
Posted: Apr 25, 2010 5:21 AM   in response to: Loves To Sing in response to: Loves To Sing
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Praise God! Glad you're doing ok Margo. Will be praying that the results from your tests come back excellent, and that you continue to recover well. Glad you've been able to get up a little, and that you got some rest Marlow. Thank you God for watching out for Margo and the doctors and nurses during her surgery. Please continue to heal her body and get rid of all the yucky stuff. Amen.
Loves To Sing

Posts: 40
Re: Follow Margo's surgery
Posted: Apr 25, 2010 1:08 PM   in response to: Loves To Sing in response to: Loves To Sing
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Margo is coming along very nicely. Now that i have spell check i may be able to spell some of the words right. the Epidural is out & the catheter will come out after she goes for a walk about 1:00 PM. She had sat in the chair some before i got here today & is eating some so that is good progress.Also seems more like herself it will take time but baby steps now are great.
Margo & Marlow
Loves To Sing

Posts: 40
Re: Follow Margo's surgery
Posted: Apr 26, 2010 5:24 PM   in response to: Loves To Sing in response to: Loves To Sing
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Well Margo is getting stronger day by day. We most likely won't know what the Pathology Report is till Friday. That takes about a week. We would hope it could be sooner but this can't be rushed.
Thanks for all the Prayers
Margo & Marlow
Loves To Sing

Posts: 40
Re: Follow Margo's surgery
Posted: Apr 27, 2010 5:20 PM   in response to: Loves To Sing in response to: Loves To Sing
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Well we got some good news this afternoon Margo may get to go home tomorrow. Also starts solid food tonight. the Pathology results are not back yet. It sounds like we may need to wait longer as the Staples come out in 2 weeks. So we will know if more treatment at that time. We will let you know as we find out I'm sure the Doctor will call & let us know at least some of the results.
Margo & Marlow
SereneMaxine


Posts: 2,190
Re: Follow Margo's surgery
Posted: Apr 27, 2010 9:35 PM   in response to: Loves To Sing in response to: Loves To Sing
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Amen! I am still praying for Margo's continued improvement.
Loves To Sing

Posts: 40
Re: Follow Margo's surgery
Posted: May 7, 2010 5:53 PM   in response to: SereneMaxine in response to: SereneMaxine
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Well, I got "the call" today. I have what is called a Retroperitoneal mucinous cystic & solid adenocarcinoma. It was 12.7 cm and is probably metastatic even though they can't find the primary. They have made an appointment for us with an oncologist to discuss chemo and then perhaps radiation therapy of the spot where it was resected from. I read some stuff on the internet about this and it is really rare and the prognosis of the cases that have been reported are short lived. I guess I should wait until we have the appointment to see what to do about this - whether they have updated information and longer term survival information. I don't know how old the information was that I read and they may have newer treatments now.

Margo & Marlow
Shar M


Posts: 15,886
Re: Follow Margo's surgery
Posted: May 7, 2010 6:58 PM   in response to: Loves To Sing in response to: Loves To Sing
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Margo, I don't know you but you are certainly in my prayers. And the doctors who will be treating you.
Loves To Sing

Posts: 40
Re: Follow Margo's surgery
Posted: May 18, 2010 7:24 AM   in response to: Shar M in response to: Shar M
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We had our appointment with the oncologist today. It is the first time we ever had a wait time. When he finally came in the room he had a report he had typed up and then discussed the "plan" with us.

Since there are so few people in the world that have this very rare condition there is little to go on for follow up treatment. So, depending on several things this is the plan:

There will be no chemo or radition if:

1) the lab for C19 they drew today is down back to normal
2) the CT scan I will have on Wed. shows no new tumors - also checking on a couple of calcifications they saw on the chest x-ray
3) the surgical pathology shows clear margins in the muscle tissue where the tumor was attached

So, it's good news so far and we are just waiting for the results of the three items above.

Your prayers have been working so far and we both are depending on your continued prayers to make sure everything stays within normal limits.

The doctor told us to get on with our lives.

We look forward to reporting continued good news later this week. I am supposed to call the doctor on Thur. for an update then we have another appointment with him on the 25th.

Love
Margo and Marlow
ssandy


Posts: 4,842
Re: Follow Margo's surgery
Posted: May 18, 2010 8:50 PM   in response to: Loves To Sing in response to: Loves To Sing
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Still praying fervently! ...and waiting to exhale!!!
ssandy


Posts: 4,842
Re: Follow Margo's surgery
Posted: May 20, 2010 5:11 AM   in response to: ssandy in response to: ssandy
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Still praying...

Ever notice how praying for someone is alot like helping a person carry their burden...that you too feel the weight of it, even daily, but God's love helps keep your back strong enough to carry on?
(this is not to mean that those of us praying can even imagine your burden, but yet somehow we share in it, because in God, we love you, and thus can feel some small portion of your pain for you? ...not sure I'm making my point well here...? Um...sort of like an extra-sensory hug/tears/hope/love thing, transported across the miles by God Satellite. :)

Loves To Sing

Posts: 40
Re: Follow Margo's surgery
Posted: May 20, 2010 6:38 AM   in response to: ssandy in response to: ssandy
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Our phone rang at about 6 p.m. today and it was the hospital. I got a little nervous because today I had a CT scan. It was the oncologist and he wanted to tell me the C-19 bloodwork came back at rock bottom. It went from 254 down to 32. This was great news!!

Then, he said the radiologist had called him to let him know I need to come back really soon to get another CT. It appears there are some spots on my lungs that look a lot like blood clots. The oncologist said that cancer often will make blood clots in the lungs. So, off I go again (probable Friday) to get another scan (with dye, again). If it is blood clots then I will have to go on blood thining medications for a few months. If they are not blood clots then they will scan again in 3 months to see if there is any growth. If so, then they will do biopsies. Oh man.

Then, he saw the pathologist today and asked him about the clear margins on the surgical bed. He was told that my case is being presented at a large meeting somewhere and all of the slides are gone and won't be returned until afterward. But, he did say that in the case such as mine where the entire tumor was removed and not attached to vital organs they usually don't worry too much about margins.

So, we await a call from the hospital tomorrow for a time for the next scan, probably on Friday. Will keep you advised.

So far, your prayers have worked in making sure the cancer was not attached to any vital organs so keep praying that these spots are clots that can be eliminated by medication.

Love
Margo and Marlow
Smiley1965


Posts: 8,217
Re: Follow Margo's surgery
Posted: May 10, 2010 11:13 AM   in response to: Loves To Sing in response to: Loves To Sing
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Margo and Marlow, you are both in my prayers. May God wrap his loving arms around both of you and know that He will be with you through everything. He will never leave you or forsake you.
SereneMaxine


Posts: 2,190
Re: Follow Margo's surgery
Posted: May 10, 2010 10:39 PM   in response to: Loves To Sing in response to: Loves To Sing
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Margo and Marlow,

Please remember that you are getting prayers from all over. Even those who don't respond to you postings have said prayers for you while reading them. You are not alone in this!

SereneMaxine
Loves To Sing

Posts: 40
Re: Follow Margo's surgery
Posted: May 21, 2010 10:38 AM   in response to: SereneMaxine in response to: SereneMaxine
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Wednesday, May 19, 2010 10:07 PM, CDT
Our phone rang at about 6 p.m. today and it was the hospital. I got a little nervous because today I had a CT scan. It was the oncologist and he wanted to tell me the C-19 bloodwork came back at rock bottom. It went from 254 down to 32. This was great news!!

Then, he said the radiologist had called him to let him know I need to come back really soon to get another CT. It appears there are some spots on my lungs that look a lot like blood clots. The oncologist said that cancer often will make blood clots in the lungs. So, off I go again (probable Friday) to get another scan (with dye, again). If it is blood clots then I will have to go on blood thining medications for a few months. If they are not blood clots then they will scan again in 3 months to see if there is any growth. If so, then they will do biopsies. Oh man.

Then, he saw the pathologist today and asked him about the clear margins on the surgical bed. He was told that my case is being presented at a large meeting somewhere and all of the slides are gone and won't be returned until afterward. But, he did say that in the case such as mine where the entire tumor was removed and not attached to vital organs they usually don't worry too much about margins.

So, we await a call from the hospital tomorrow for a time for the next scan, probably on Friday. Will keep you advised.

So far, your prayers have worked in making sure the cancer was not attached to any vital organs so keep praying that these spots are clots that can be eliminated by medication.

Love
Margo and Marlow
SereneMaxine


Posts: 2,190
Re: Follow Margo's surgery
Posted: May 22, 2010 10:41 PM   in response to: Loves To Sing in response to: Loves To Sing
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Thank God for hearing our prayers! Please let us know about your second CT scan and I will be continuing my prayers for you!
Smiley1965


Posts: 8,217
Re: Follow Margo's surgery
Posted: Apr 12, 2010 9:53 AM   in response to: Margoc in response to: Margoc
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Hi Margo, thanks for the update; we are and will be praying for a successful outcome. Nice to catch up with you chatting last night; by the time you said you were back, I was sound asleep! Thank you God for the friends you have surrounded Margo with. Please give her comfort and peace and healing, in Jesus' name, amen.
MSisME

Posts: 589
Re: Follow Margo's surgery
Posted: Apr 12, 2010 10:27 AM   in response to: Margoc in response to: Margoc
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Your journey so far in 2010 has been remarkable. Remarkable in that you are remaining so positive and letting your faith shine through. The love between you and Marlow is a wonderful example for all others too.
You are always in our prayers (us chatters). Blessings on the coming month! And much love.
Jkat


Posts: 359
Re: Follow Margo's surgery
Posted: Apr 12, 2010 11:29 AM   in response to: Margoc in response to: Margoc
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Margo...Mom and I are sending our prayers and love...Please keep us updated...God go with you:)
mnsara


Posts: 531
Re: Follow Margo's surgery
Posted: Apr 13, 2010 3:58 PM   in response to: Margoc in response to: Margoc
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Thinking and praying for you!
SereneMaxine


Posts: 2,190
Re: Follow Margo's surgery
Posted: Apr 13, 2010 10:25 PM   in response to: Margoc in response to: Margoc
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Margo, you are truly Blessed in your positive attitude about this. I am adding you to my prayer list and please keep us posted on your progress.
MSisME

Posts: 589
Re: Follow Margo's surgery
Posted: Apr 23, 2010 10:31 AM   in response to: Margoc in response to: Margoc
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Prayer request also posted on "Beside Quiet Waters" forum for Margo.